Support. The comfort of knowing you are held up, and that your decisions are validated. That someone has your back. That you will not be let down. That there is someone to help you when you need it. That you are not alone.
I am obsessed with support. Writing out endless forms to get my son into the appropriate preschool, and to secure funding for said preschool. There is support available. But there are hoops first, a veritable cornucopia of obstacles. May the odds be ever in your favour.
Anyone who has crossed paths with the local authorities knows what these forms are like. DESCRIBE THE WAY(S) IN WHICH YOU NEED THIS SUPPORT, they shout at you in thick bold letters, on inscrutable PDF formats that don’t format correctly when amended. GIVE EXAMPLES OF THE SUPPORT REQUIRED & THE TIME IN MINUTES EACH TASK WILL TAKE.
I do my best to list and correlate and describe in intense detail exactly what support he needs, in which areas of his development, and at which time of day and how frequently per week. Forty pages at the last count. NOW PLEASE GO TO PAGE 72 and DETAIL ALL HEALTH PROFESSIONALS (and their national insurance numbers in birth date order). I would do it. Because we need the support.
In a flurry of weeks ahead of a looming deadline, we do the work. We jump the hoops, we wait. We wring our hands and chase up on the phone. We leave polite but anxious messages. We fill in more forms. We wait. And then….We get the place. JOY! We do tiny dances in kitchens and whoop with the key workers and write effusive thank you letters to the people that have helped proof read, add supporting documents and counter signatures. We kick start the next round of logistical planning. We almost remember to take a breath and then forget.
Three days later I sit in the humid front room of my counselor’s house with my head in my hands and breathe. The windows are all flung open onto a very smart street in Hampstead, but the curtains are closed to keep the strength of the afternoon sun at bay. It gives the room a strange illicit feeling. Like she should be burning joss sticks and smoking opium. Maybe she does. I don’t know this woman well. We have had a few sessions. She mainly listens and asks pointed but relevant questions. She frowns far too much. I think it might just be her face. This is my chosen support. Cobbled together fairly last minute when I found myself crying on the tube and unable to sleep. I’m unsure about it at this point.
During this session, I have been waffling on a bit, not really sure what I am getting at and feeling irritated with her quiet nodding. Exasperated, and probably a bit on the dramatic side, I sigh
‘I just feel like I need more support’
She frowns from her wicker chair in the corner where she sits like a sphinx, both arms perfectly still on either arm of the chair. She cocks her head to one side,
‘What support do you feel you need?’
And there it is.
I have no fucking idea.
Outside of that room, I am at a loss. A friend of mine who manages large teams in a high profile job, and a big family, puts a question to me. Its the same one she puts to her employees who say they are finding it hard to get the work life balance to make sense, she asks, ‘What do you want me to do about it?’
Not in an aggressive or defensive tone, but as a real question. What do you need from me to help you? What does your unique set of circumstances require?
I realized, while sitting on this very worn sofa in semi darkness somewhere in NW3 that I needed to to know the answers to these questions. What support do I need? What does it look like? How often will I require it? Does it require input from a different department (family) or additional funding (HA)? If I were applying for support for myself – what would I say on the forms? As a grown woman approaching 40 I need to get better as knowing the answers to these questions, and when someone offers to help, to say YES and explain where it would be needed.
If I have learned anything this year its that you need a team around you. We have a brilliant one in place for our son now, its flexible but has a solid foundation in the right health professionals, independent third parties and outsourced advice, so I don’t feel if one had to go we’d be bereft. I’m looking at building something similar for myself. Starting with family and working my way out. Looping in new connections, making sure there’s a good mix of advice, and time to be on my own. For me support is equated with finding time not to be a mother/wife/boss/general of life admin. Support is getting help with those things, asking for specifics. And letting go of the rest.